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Sickle cell “warrior” Excel Praiseworth is making music to manage chronic pain and raise awareness of the disease

Sickle cell “warrior” Excel Praiseworth is making music to manage chronic pain and raise awareness of the disease

"WHEN you are rolling in agony, yeah they call it a crisis. But your bones are on fire, and you can't even describe it…..They say, 'We will try to control the fever, oh, I think you're dehydrated, we'll check your breathing, you need some oxygen', but I just want the pain to go away." These are some of the lyrics in Excel Praiseworth's 'Sickle Song', streamed almost 7,000 times on Spotify alone. Excel, who lives with his family in Abuja, Nigeria, was diagnosed with sickle cell anaemia at nine months old. According to the Centre for Disease Control and Prevention…
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Collaboration on therapy for sickle cell disease

Collaboration on therapy for sickle cell disease

NOVARTIS has entered into a grant agreement with the Bill & Melinda Gates Foundation to fund the development of accessible single-use gene therapies to cure sickle cell disease (SCD), the pharmaceuticals company said yesterday. The project aims to address disparity in access to treatments and prioritize populations and regions that bear the greatest burden of the hereditary blood disease, Novartis said. Around 300,000 people are born with the condition annually. Sub-Saharan Africa is particularly badly affected by SCD, which reduces the ability of red blood cells to transport oxygen and can be fatal.
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